Help the mother, help the child, secure the future: maternal and child health in India

Photo (c) Children In Need India

Like many people ‘of colour’, I am occasionally subject to a random dousing of imprecise and pejorative cultural clichés by ignorant people with a superiority complex, just like a delicate lotus blossom caught in a balmy, allegorical, toxic monsoon shower.

Woman in publishing, at literary festival: “What do you do?”
Me: “At the moment I’m working with the Gates Foundation and Johns Hopkins University, reporting on international development? No, before you ask, I haven’t met the Gates’s. The next thing I’m doing is on maternal health, I think. It’s really interesting.”
Woman in publishing: “Oh! That’s so interesting because the other day I was thinking to myself, I had trouble with my two pregnancies and if I’d been having my babies in the developing world, I wouldn’t have survived. Do you know [random British Asian woman in publishing PR]? Because you look like her and you remind me of her.”
Me: ???

I have no doubt that I in no way resemble the one other Asian person Publishing Woman has met in her working life. Poor PW, we met for 10 minutes out of nowhere and she couldn’t stop talking about race, refugees, poverty and the pathetic ills of the ‘developing world’ – it’s like she had racial Tourettes. And had I been able to recover from the speechlessness that afflicted me at the crucial moment, despite the fact that I talk for a living, I would have asked her which country exactly in ‘the developing world’ (which bigots usually take to mean everywhere or possibly anywhere from Senegal, across Libya, Somalia, Congo, down to Mozambique, then up through Iraq, Iran, Afghanistan, Uzbekistan, definitely India, Pakistan, Bangladesh, Sri Lanka and then possibly through to rural China perhaps… and maybe Burma, or rural Indonesia…and maybe also acrossways to some countries in South and Latin America, oh and the Caribbean islands maybe too, and gosh even some parts of Greece?) she meant, and then which region in which country.

The whole thing – or rather, her gloating and ignorance – made me think of an article I wrote a long while back, about Children in Need India. I described ‘two Indias’: that of the extremely numerous privileged middle class, who have the finest education, prospects, family support, influence, connections and healthcare; and that of the poorest, who despite the general dynamism, ambition and industry of today’s India still suffer due to lack of access to healthcare, education, influence, rights and justice. So often, it is only the second India that the wider world sees. It pains me, as a British Indian, that the rest of the world is blind to the incredible humour, energy, intelligence, broadness and enlightenment I see everywhere in India. In many ways, as a woman I find Indian culture much more sisterly and infinitely less misogynistic, judgemental, brittle, sleazy, objectifying, ageist-sexist and dollybirdish than British culture – but that’s a subject for another article.

Still, when it comes to society’s least advantaged, there are certain issues which cannot be ignored. India has a population of around 1 billion people and poverty, hunger, illness, gender and class injustice, lack of access, lack of rights, abuse, exploitation and geographical isolation from sources of both power and assistance (such as healthcare) are disproportionately weighted against those with the least. In short, despite India’s great achievements and many distinguished citizens, there are still an awful lot of poor, disempowered, ill and hungry people.

Looking back through Children in Need India’s work since I wrote that first 'two Indias' article, it is clear that solving the most fundamental problems must start from birth. I was intrigued by CINI because it started up with just two clinics for deprived children in Kolkata, where my mother’s family are from, and has since grown into a much larger organisation operating in West Bengal.

They present some sobering statistics, from Unicef studies:

• Infant mortality is highest in India than anywhere else in the world. According to Unicef’s 2010 figures, the majority of the 6,000 children who die in India every day, the majority are from preventable causes.
• Almost a half of all children under the age of five in India are clinically malnourished (Unicef study, January 2012)
• According to Unicef’s 2005 figures women in India are 80 times more likely to die during childbirth than in the UK due to lack of access to basic healthcare and monitoring during pregnancy for poorer women, as well as malnutrition and anaemia, which are linked.

There are further statistics – all, sadly, predictable – relating to rates of child labour, the possible consequence of exploitation and abuse of children who labour, the young age of girls’ marriage in rural areas, relatively low rates of child education (education in India is now free for all but uniforms and books can be expensive) and the knock-on effect in terms of adult literacy and, of course, gender equality.

This month the Wilson Centre in America held an extremely wide-ranging conference on Maternal Health in India: Emerging Priorities. There is a brilliant sum-up and full footage of the conference here. Taking place across New Delhi, Boston and Washington, the speakers argued strongly for the issue of maternal health to be seen in the context of multiple underlying social, health and economic factors, pointing out the importance of various key factors. First, more attention must be paid to women's health after giving birth - focusing on morbidity, not just mortality - and ensuring that all of a woman's health needs, from family planning to sexual health, are met in the same (geographical) place by the same people or organisation. Second, there must be an understanding of he importance of family planning: fewer pregnancies, with longer gaps in between, are better for women's physical and mental health and the health of their babies. And third, the importance of post-partum health care and sustained treatment cannot be underestimated.

Underlying all of this are the effects of gender inequality on women's health: early marriages leading to early and numerous births; violence against women; the underprivileging of female family members when it comes to feeding/serving, leaving women with the worst and least food (leading to malnutrition and anaemia) and the most and hardest labour within the house and beyond it. Class is also a powerful influence on Indian women's access to healthcare: disenfranchisement due to caste or other low class status is serious and widespread.

When it comes to healthcare, the best work is done through direct outreach, local engagement and the creation of long term relationships and structures: in one film, CINI describes visiting people door to door, inviting local people to meetings, the setting up of ‘panchayat’ council meeting where citizens speak up about what they need and are also educated and informed of their rights. In this way, the fundamentals – health, education, nutrition – are slowly strengthened. One intriguing project, which kills two birds with one stone (so to speak… actually it gives life to two birds with one stone…) is the ‘Nutrimix’ nutritional project: this is a pre-mixed nutritional food supplement which benefits Under-5s, which is sold by women to their local communities at a low price, but with a  small profit. It incentivises the women to sell and benefits them financially, while also aiding child health.

Other solutions are more traditional, like drop-in clinics giving advice on prenatal care, nutrition, vaccinations (one doctor talks positively about the success of the polio vaccination project at her clinic – once mothers see how simple it is, they are bringing as many local children as they can), reproductive health and more. Still, the strong theme of gender inequality, sexual exploitation and hypocrisy cuts through all of these issues. The clinic deals with STI’s, among other things, and it is left tactfully open as to where the STIs come from (hint: it’s not the women). Many of the women having babies are under-nourished because, even in a generally poor family, the men and boys will be privileged and the mother will eat last. In the film, one doctor at a baby clinic gestures to a patient and points out that the woman (and by consequence her baby) is under-nourished and in frail health because, due to a lack of contraception and consideration from her husband, she has too many children, who she can’t feed and is visibly too exhausted to look after.

Still, it is these same women who are finding a voice. From the seemingly small act of seeking and receiving healthcare treatment they are empowered to take a stand not only in their local area – one example is of women going door-to-door and educating their neighbours about the importance of environmental health and sanitary local conditions, which help to prevent the spread of germs – but also speaking out against the marrying-off of girls at a young age and insisting on the right for all children, whether they are boys or girls, to be educated. They are also empowered to demand safe and adequate healthcare. As one woman says: “We also want all mothers to be able to give birth in a hospital, without the risks of a home birth.”

Bidisha is a 2013 Fellow for the International Reporting Project. She is reporting on issues of global health and development. 

Vaccines and immunisation: don’t leave a fifth of the world’s children behind

“The hospitals are filled with children with vaccine preventable diseases.”

Johanna Sekennes, Médecins Sans Frontières, Head of Mission, Mali

The rain’s falling thickly onto the roads in rural eastern Mali, preventing cars from passing and making travel by foot virtually impossible. Yet – as a beautifully shot yet hard-hitting new short film, A Preventable Fate, by Venetia Dearden, makes clear – the rainy season does not mean a halt to all industry.  Instead, it coincides with the farming season. Hard-working women, many with children on their backs, labour in the fields to ensure a good crop and a good livelihood. Their responsibilities to the land, to their families and to the sustainability of their agricultural practices, combined with environmental and other external factors, are just some of the complex obstacles standing in the way of them accessing adequate healthcare for themselves and their children. In the first year of their lives, children must receive vaccines five separate times – a tough ask for women given the distance that sometimes needs to be covered, the cost or difficulty of the journey and the other labour-demands a woman is subject to for survival.

The images of rural life in Dearden’s film have a liveliness, community spirit and wholesomeness which belie the tougher realities of under-resourcing in the area and generally in rural and economically disadvantaged regions across the developing world. A Preventable Fate is part of a series of six films around the theme of Fatal Neglect, produced by Doctors Without Borders to highlight the obstacles faced by millions of people worldwide in accessing quality healthcare. The series also includes a study of treatment-resistant TB and three neglected tropical diseases.

In looking at the issue of vaccinations and immunisation in Mali we see that the women working so hard in the fields do not have a day to spare to take their children to be vaccinated – a journey which is difficult even by car, let alone on foot. If a woman happens to live in a village where there is no local vaccine campaign, she may have to go even further away. A Preventable Fate features a woman explaining to a doctor at a vaccine project that she has two children and came to visit the project by bike, “and I got a flat tyre. So I had to walk. It’s very difficult.” It is too much to demand of a mother or other caregiver that they take each child to a vaccine campaign outpost at least five times within that child’s first year, when shortages of vaccines may mean that repeat visits are necessary, and that trips are made without knowing whether the vaccines will be available. For those children who receive perhaps two or three of their five shots in the first year, few workable systems are in place to record, trace and make up for the vaccines they have missed when they are a little older.

Photograph (c) Medecins Sans Frontieres

 In addition to the challenges of time, distance and work neglected are problems with establishing vaccination campaigns themselves, in terms of personnel alongside the stocking, transportation, safety and sustainability of medicines. More health professionals who can administer the vaccines are needed; the ideal thing would be to have locally-trained, locally active nurses not just providing vaccines by operating as a reliable and stable way of raising awareness amongst communities. The vaccines must also be transported correctly; a challenge when considering that many require something called a ‘cold chain’, that is refrigeration at a specific temperature otherwise they become invalid. This requires the useage and maintenance of refrigerators and icepacks to store and transport vaccines.

Thus the seemingly simple question of providing vaccines becomes complicated in areas where electricity provision and consequently refrigeration is sporadic, healthcare professionals are scarce, distances between services and users are long, natural temperatures are high and road quality is variable. What is required is the development of vaccines which are easier to deliver and easier to administer to children.

In May 2012 the 65^th World Health Assembly designed a Global Vaccines Action Plan to kickstart a well-funded Decade of Vaccines project working towards global vaccination. However, as the Fatal Neglect project makes clear, all major health initiatives must be sensitive to the particular challenges and particular contexts in which healthcare initiatives are established and provided – with a particular focus on those who are being left out due to issues to pricing, the adaptation of medicines and logistical barriers. MSF’s report The Right Shot: Extending the Reach of Affordable and Adapted Vaccines explains some of these issues in detail. They suggest that instead of developing countless (and expensive) new vaccines such as those against pneumococcal disease and rotavirus, the basics of existing routine vaccine systems should be perfected and adapted to theenvironments in which they will be used so that they can benefit the most children, especially in remote, rural, civically fragile/unstable or economically disadvantaged areas. In India’s state of Bihar, for example, 60% of babies are not fully vaccinated. The MSF points out that failure to perfect the access, ease, stability and application of the most basic vaccine programmes have resulted in recent outbreaks of preventable diseases, like the 2010 measles outbreak in 28 African countries. In the Democratic Republic of Congo (DRC) alone, 100,000 cases were reported between January 2011 and October 2011. Although there are many factors affecting the pricing of vaccines, a cynical reading could conclude that the basic, inexpensive vaccines programmes are not being perfected because there is little financial incentive for pharmaceutical companies to tailor their vaccines to help those populations who have little purchasing clout as consumers themselves.

The message on vaccines and immunisations is clear, but tough to swallow. At the moment, 20% of all babies born in the world – that is 22 million children born last year alone - are not receiving protection against basic yet potentially fatal diseases such as measles, meningitis, diphtheria and yellow fever.  Underpinning the moral argument that all children born worldwide deserve the basic human right to life, health, protection and the best start in life, since medicine should not be a luxury is the transformative future effect we can envisage on already-pressurised global healthcare initiatives. Universal vaccination would drastically reduce pressure on hospitals, child mortality rates and sickness rates.  Vaccines must be researched,developed, produced and delivered in such a way that they are easier to use, easier to administer, more temperature-stable, easier to transport, adapted to developing countries’ environmental factors and also the medical factors – that is, the specific strains of the diseases found in the countries in which they will be used. Single dose vaccines which do not required difficult multiple visits; vaccines which are administered orally rather than by injected; well-trained, numerous and either highly mobile or strongly rooted and dedicated local healthcare professionals; vaccines which are affordable to all countries in the long run and not just those which rely on finite donor support through the Global Alliance for Vaccines and Immunisation (GAVI)  to pay for them; and vaccines which do not degrade in variable temperatures would be just some of the ways forward, or more that 22 million children will pay the price.

Photo (c) Medecins San Frontieres

Bidisha is a 2013 Fellow for the International Reporting Project. She is reporting on issues of global health and development.